Inclusion

The Politics of Difference in Medical Research

By: Steven Epstein

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Paperback | 1 April 2009 | Edition Number 1

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432 Pages

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2.28 x 1.52 x 0.25

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With Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions.

Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men—and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clinical research. While the prominence of these inclusive practices has offered hope to traditionally underserved groups, Epstein argues that it has drawn attention away from the tremendous inequalities in health that are rooted not in biology but in society.

“Epstein’s use of theory to demonstrate how public policies in the health profession are shaped makes this book relevant for many academic disciplines. . . . Highly recommended.”—Choice

“A masterful comprehensive overview of a wide terrain.”—Troy Duster, Biosocieties

Industry Reviews

"Epstein's use of theory to demonstrate how public policies in the health profession are shaped makes this book relevant for many academic disciplines.... Highly recommended." - Choice "A balanced analysis of the positive and negative effects of institutional changes on groups that are traditionally underrepresented in biomedical research." - New England Journal of Medicine"

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Non-Fiction Medicine Medicine in General Medical Equipment & Techniques Medical Research Politics & Government Medicolegal Issues Society & Culture Social Groups Social Issues & Processes Social Discrimination & Inequality Miscellaneous Items

Sociology & Anthropology

Acknowledgments	p. vii
List of Abbreviations	p. xi
Introduction: Health Research and the Remaking of Common Sense	p. 1
How to Study a Biopolitical Paradigm	p. 17
Histories of the Human Subject	p. 30
The Rise of Resistance: Framing the Critique of the Standard Human	p. 53
The Path to Reform: Aligning Categories, Targeting the State	p. 74
Opposition to Reform: Controversy, Closure, and Boundary Work	p. 94
Formalizing the New Regime	p. 116
From the Standard Human to Niche Standardization	p. 135
Counts and Consequences: Monitoring Compliance	p. 155
The Science of Recruitmentology and the Politics of Trust	p. 182
To Profile or Not to Profile: What Difference Does Race Make?	p. 203
Sex Differences and the New Politics of Women's Health	p. 233
Whither the Paradigm?	p. 258
Conclusion: Identity, Difference, Disparities, and Biopolitical Citizenship	p. 277
Chronology	p. 303
Interviews	p. 307
Notes	p. 311
Index	p. 395
Table of Contents provided by Ingram. All Rights Reserved.

Inclusion

The Politics of Difference in Medical Research

At a Glance

Paperback

Industry Reviews

Shipping

How to return your order

Defective items

You Can Find This Book In

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