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Ultra-Violet

One Girl's Prader-Willi Story

By: Debbie Frisk, Chelsea McCutchin

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Paperback | 8 September 2014

At a Glance

Paperback
82 Pages

Dimensions(cm)
24.41 x 16.99 x 0.43

Paperback

$20.75

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Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.

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