Responsible Genetics

The Moral Responsibility of Geneticists for the Consequences of Human Genetics Research

By: A. Nordgren

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Hardcover | 31 December 2001

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22.23 x 15.24 x 1.27

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MORAL RESPONSIBILITY AND THE HUMAN GENOME PROJECT The Human Genome Project (HGP) is now almost completed. A draft of the full DNA sequence of the human genome has recently been published (lnt. Hum. Gen. Seq. Cons., 2001; Venter et al., 2001). The project started in 1990 and was planned to be completed fifteen years later. lt is now clearly ahead of schedule. But even when the project is completed much work remains-the analysis of the function of the 30-40,000 genes in the human genome is beyond the scope of the project and willlast for decades. However, even before the HGP started, it was rather controversial from an ethical point of view; not so much because of the sequencing work as such, but because of its anticipated consequences. The results of the project might be used, for example, in developing genetic tests, genetically tailor-made drugs, and gene therapies. Some people fear that genetic testing may lead to discrimination in insurance and at the workplace. Some view the pharmaceutical companies' research on genetically tailor-made drugs as an unacceptable commercialization of science. Some anticipate that the development of gene therapy will give rise to a society in which parents want to design perfect babies with genetic enhancement techniques.

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Acknowledgments	p. ix
Introduction	p. xi
Moral Responsibility and Moral Imagination	p. 1
The Metaphor of Moral Responsibility	p. 1
Engineering or 'Tinkering' in Moral Reasoning?	p. 15
Imaginative Casuistry vs. Other Normative Positions	p. 25
Imaginative Casuistry in Bioethics	p. 41
Moral Responsibility in Science	p. 51
Research Ethics	p. 51
Responsibility 'of'	p. 54
Responsibility 'to'	p. 64
Responsibility 'for': Choice of Subject	p. 69
Responsibility 'for': Research and Publication	p. 73
Responsibility 'for': Application	p. 76
Content and Form of Responsibility: General Proposals	p. 84
The Human Genome Project: Justification, Promotion, and Access to Results	p. 91
Summary and Application: Responsible Genetics	p. 91
Dialogue and the Human Genome Project	p. 92
Justification of the HGP	p. 96
Promotion of the HGP	p. 105
Genetic Knowledge: Open Access or Private Patents?	p. 114
Gene Hunting, Genetic Testing, and Genetically Tailor-Made Drugs	p. 127
Dialogue in Genetic Research and Application	p. 127
Gene Hunting in Families	p. 130
Gene Hunting in Ethnic Groups	p. 136
Genetic Testing and Genetic Counseling	p. 146
Genetic Screening and Public Health Work	p. 156
Genetic Information in Employment and Insurance	p. 160
Genetically Tailor-Made Drugs	p. 165
Genetic Modification of Humans and Laboratory Animals	p. 171
Dialogue and Gene Therapy	p. 171
Germline Gene Therapy	p. 182
Genetic Enhancement	p. 199
Animals Used in Human Genetics Research	p. 200
Eugenics and the Long Term Goals of Reprogenetic Medicine	p. 215
Responsibility for Applications of Genetics: Professional Policy	p. 215
Dialogue on the Long Term Goals of Reprogenetic Medicine	p. 218
Learning from History: Eugenics	p. 223
Genotypic Prevention vs. Reproductive Autonomy: Three Prototypical Views	p. 229
Proposals regarding the Long Term Goals of Reprogenetic Medicine	p. 248
Bibliography	p. 261
Index	p. 271
Table of Contents provided by Syndetics. All Rights Reserved.

Responsible Genetics

The Moral Responsibility of Geneticists for the Consequences of Human Genetics Research

At a Glance

Hardcover

Shipping

How to return your order

Defective items

You Can Find This Book In

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