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A Patchwork of Care

Living the Reality of Dementia Caregiving

By: Duncan Summers

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Paperback | 28 August 2026

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Format
Paperback

Dimensions(cm)
13.8 x 21.7 x 2.0

Paperback

$36.75

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Duncan Summers did not set out to write about dementia, but the reality of living with it shattered any expectations he had about the condition. He had imagined Alzheimer's as quiet forgetfulness and gentle fading away, sad, but manageable. Instead, it brought chaos, fear, and constant uncertainty. Memory loss began as a softening, but soon led to agitation, confusion, and sudden mood shifts. The person he loved was still there, yet unreachable, often terrified in a world that no longer made sense. There is no steady decline, no pattern—some days started with clarity, others with anger or suspicion. Plans are impossible; reassurance never lasts. Every day demands an emotional strength it is almost impossible to plan for. What shocked Duncan most was how unprepared everyone was, including professionals. The public image of dementia didn't match the reality of daily life. Support existed on paper, but rarely in practical forms. Dementia takes away dignity in ways that are not often discussed. It reverses roles, exposes vulnerabilities, and strains relationships. This isn't a medical guide, but a personal record of what dementia is like—frightening, exhausting, and confusing. This book is for those living through it, those who may face it, and those who think they already understand it. It's an honest attempt to replace myths with lived through truth.

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