The present work has emerged as the result of several years' involvementin various multidisciplinary research projects which have been carried out within the - search Programme in Biomedical Ethics at Uppsala University, now the Centre for Bioethics at Karolinska Institutet and Uppsala University. I am grateful to various colleagues who have taken part, whether brie?y or at length, in discussions of the concepts of privacy and integrity. Hearty thanks must go to Gert Helgesson, Ulrik von Essen, Par Segerdahland Richard Wessman who have read the initial version of the book and provideduseful comments. I am particularlyindebted to Par for taking the trouble to read the whole manuscript a second time. Arne Ohman and his - searchgroupatthe PsychologySectionin theDepartmentofClinical Neurosciences at Karolinska Institutet read an earlier version of Chapters 3 and 4. This provided a constructive and rewarding discussion which was of particular value to me since psychologydid not form part of my own professionaltraining. Sven Danielsson and the members of his research seminar in practical philosophy at Uppsala University read Chapters 5 and 6 and offered constructivecriticism.
Their critical views helped me to try to express more clearly the aim of these chapters within the framework of the book as a whole. All the readers of the book or parts of it can certainly have reason to wish for further revisions or indeed for a different presentation of the problem of understanding the role of the agent in the private sphere.
Foreword Introduction * A new approach to understanding the concepts of privacy and integrity * Four literary contributions as an introduction to understanding the concept of integrity * The private sphere from a historical and cultural perspective * Integrity as an emotional territory -- a psychological and evolutionary perspective * Integrity as something worthy of moral protection * Respect for the individual as a person with moral and political authority-integrity from a philosophical perspective * Balancing seclusion and participation-integrity from the perspective of moral philosophy, jurisprudence and the law * Integrity as a quality worthy of esteem and respect 1. The private sphere from a historical and cultural perspective 1.1 In the supposed seclusion of the home 1.2 What will the neighbours say? 1.3 Power over spiritual life and thought- the private sphere from a religious perspective 1.4 To retire with a book - the private sphere from a literary perspective 1.5 To participate in distinguishing between what is public and what is private 2. The private sphere as an emotional territory -- a psychological and evolutionary perspective 2.1 Emotions which are constitutive for a person's private sphere 2.2 The emotional territory's significance in evolutionary development 2.3 Integrity - a complex property of the individual 2.4 Three candidates: fear, embarrassment and pride 2.5 The role of the emotions in the establishment of social order - dominance and submission 2.6 The experience of self 3. Integrity as something which is morally worth protecting 3.1 A teleological perspective with regard to integrity 3.2 The moral value of protection from the viewpoint of the individual's capacity for sentient experience 3.3 The moral value of protection from the viewpoint of the individual's capacity for action 3.4 Integrity as a socially significant property- the starting point for moral integrity 4. Respect for the individual as a person with moral and political authority - integrity from a philosophical perspective 4.1 Individual freedom meaningful first in a social context 4.2 Individual freedom exhibited at different social levels 4.3 A new approach to self determination 4.4 Social recognition: from separation to participation 4.5 Respect for integrity as social recognition 4.6 The individual as a person with moral and political authority 4.7 Participating with knowledge, insight and influence 5. Balancing seclusion and participation - integrity from the perspective of moral philosophy 5.1 Is the protection of private life adequately covered by other rights? 5.2 Social conventions shift the boundaries 5.3 The basic interest in avoiding certain types of insight and invasion 5.4 The value of a differentiated social life 5.4 Non-interference does not solve the dilemma of balancing interests 5.5 Basis for balancing interests 6. Legal protection -- privacy and integrity from the perspective of jurisprudence and the law 6.1 The Declarations set the basic tone 6.2 The significance of the private sphere for democracy 6.3 The right to protect what is one's own 6.4 Legislation arrives at the same result but in different ways 6.5 Focussing on a careful legal process 6.6 The limitations of the consent norm 6.7 Respect for private life as a complement to the consent norm 7. Integrity as a quality worthy of esteem and respect 7.1 The continuity of the concept of integrity 7.2 Being true to oneself and others 7.3 Integrity as both a personal and social quality 7.4 In contact with the internal goal of an activity 7.5 The moral substance psychologically grounded 8. Conclusions and applications 8.1 Conclusions What is integrity? Why should one respect an individual's integrity? How should the interest of integrity be balanced against other interests? 8.2 Ethical considerations involved in balancing interests in biobank research Biosamples taken for different purposes Genetics as hyperbole To be left in peace but at the same time to participate To participate in the development of medical knowledge The integrity of the researcher and persons in authority References
Series: Philosophical Studies in Contemporary Culture
Number Of Pages: 179
Published: 28th December 2007
Publisher: Springer-Verlag New York Inc.
Country of Publication: US
Dimensions (cm): 23.5 x 15.6
Weight (kg): 0.99