The Oxford Handbook Of Genetic Counseling

Contributors Preface Acknowledgments

Part I: The Emergence and Establishment of the Genetic Counseling Profession 1 - Negotiating Heredity, Choice, and Coercion: A Gendered History of Genetic Counseling and Reproductive Advice, 1910-1960 Devon Stillwell

2 - The Development of Education for Genetic Counselors Bonnie Jeanne Baty and Claire Davis

3 - The Professionalization of Genetic Counseling Vickie L. Venne and Edward M. Kloza

Part II: Engaging in the Practice of Genetic Counseling 4 - A Theory of Responsive Genetic Counseling Practice Robin E. Grubs and Maria Piantanida

5 - The Reciprocal-Engagement Model of Genetic Counseling Practice Patricia McCarthy Veach and Bonnie S. LeRoy

6 - New Perspective in Psychosocial Genetic Counseling Jon Weil

Part III: Contexts of Genetic Counseling Practice

7 - Prenatal Genetic Counseling Sandra A. Darilek and Jennifer Hoskovec

8 - Pediatric Genetic Counseling Carol S. Walton

9 - Cancer Genetic Counseling Stephanie A. Cohen 10 - Specialization and Sub-Specialization in Genetic Counseling: Trends and Drivers Catherine A. Wicklund and Angela M. Trepanier

11 - The Genetic Counselor's Role in Direct-to-Consumer Genetic Testing Anne E. Greb

12 - Genetic Counselors as Researchers Julia Wynn and Tara Schmidlen

13 - Genetic Counselors in Marketing and Industry Elissa Levin and Edgar MacBean

14 - Genetic Counseling Approaches for Adolescents and Young Adults Melanie F. Myers and Wendy R. Uhlmann

Part IV: Navigating Contemporary Issues in Genetic Testing and Genetic Counseling Practice

15 - Considerations Before Testing: Patient Education, Decision Making and Informed Consent Kelly E. Ormond

16 - Testing Strategies: Navigating the Path of Genetic Testing Lee A. Zellmer and Emily G. Farrow

17 - After the Test: Interpreting a Clinical Report Isabelle Thiffault and Carol J. Saunders

18 - Genetic Counselor Liability and Licensure in the Genomics Era Susan M. Wolf, Gary E. Marchant, Hannah M. Oliason, Bonnie S. LeRoy

19 - Family History in Contemporary Genetics Debra L. Collins and Devin M. Cox

20 - Common and Complex Traits: Considerations for Genetic Counseling Eleanor Feingold

21 - Risk Assessment of Secondary Findings Eric T. Rush

22 - Genetics and Genetic Counseling in the Internet Age Lauren Gallagher and Leslie Ordal

Part V: Normative Concepts and Ethical Issues in Genetic Counseling

23 - Nondirectiveness in Genetic Counseling: Conceptual and Normative Dimensions Michael J. Deem

24 - Communicating Family Information in Genetic Counseling: An Ethical Perspective Samantha J. Leonard and Ainsley J. Newson

25 - Genetic Counselors' Personal Reactions and the Ethical Implications for Genetic Counseling Practice Patricia McCarthy Veach and Krista Redlinger-Grosse

26 - Ethical and Social Issues Connected to Genetic Testing of Fetuses, Infants, and Children Dena S. Davis

27 - Genetic Counseling and the Problem of Exploitation Naomi Scheinerman

28 - Precision Medicine's Ethical Challenges: Roles for Genetic Counselors Lisa S. Parker

Part VI: Culture, Disability, and the Social Effects of Genetic Counseling

29 - Cultural Responsiveness and Linguistic Competence in Genetic Counseling: Taking Responsibility Nancy Steinberg Warren

30 - Genetic Counseling Outcomes, Patient Empowerment, and the Genetic Counseling Outcome Scale Marion McAllister

31 - Reforming Informed Consent: On Disability and Genetic Counseling Elizabeth Dietz and Joel Michael Reynolds

32 - Genetics and Disadvantage: Inequity, Stigma, and Expectation Angus Clarke

Part VII: The Future of Genetic Counseling

33 - Anticipating the Growth of Genetic Counseling Megan E. Trinkle-Tucker and Beverly M. Yashar

34 - Globalization of Genetic Counseling Mercy Ygoña Laurino and Austin E. Bland

35 - Growing Up with Genomes: Ethical and Practical Considerations of Prenatal and Postnatal Genomic Sequencing Marsha Michie and Aaron J. Goldenberg

36 - Considering the Future of Genetic Counseling Deborah Cragun, Robert Resta, and Daniel Lee Riconda