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critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.
| A Note on Language | p. xi |
| Foreword | p. xiii |
| Preface | p. xix |
| Introduction: Why This Book? | p. 1 |
| Facing Your Child's Life-Threatening Condition | p. 17 |
| Individuality of Disease, of Child and Family, and of Choice | p. 35 |
| Taking Control of Your Life | p. 43 |
| Coming to Terms | p. 77 |
| Your Spiritual Mindset | p. 127 |
| The Turning Point | p. 137 |
| Some Needed Preparation | p. 153 |
| Finding Peace | p. 173 |
| Epilogue | p. 193 |
| Further Resources | p. 199 |
| Further Reading | p. 201 |
| Acknowledgments | p. 207 |
| Index | p. 211 |
| About The Children's Hospital at The Cleveland Clinic | p. 219 |
| About the Life Institute | p. 220 |
| Table of Contents provided by Rittenhouse. All Rights Reserved. |
ISBN: 9780738205342
ISBN-10: 0738205346
Audience:
Professional
Format:
Paperback
Language:
English
Number Of Pages: 240
Published: 1st December 2002
Publisher: INGRAM PUBLISHER SERVICES US
Country of Publication: GB
Dimensions (cm): 21.5 x 13.9
x 1.5
Weight (kg): 0.32
Edition Number: 1
