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Shelter From The Storm : Caring For A Child With A Life-threatening Condition - Daniel Tobin

Shelter From The Storm

Caring For A Child With A Life-threatening Condition

Paperback Published: 1st December 2002
ISBN: 9780738205342
Number Of Pages: 240

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critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.

A Note on Languagep. xi
Forewordp. xiii
Prefacep. xix
Introduction: Why This Book?p. 1
Facing Your Child's Life-Threatening Conditionp. 17
Individuality of Disease, of Child and Family, and of Choicep. 35
Taking Control of Your Lifep. 43
Coming to Termsp. 77
Your Spiritual Mindsetp. 127
The Turning Pointp. 137
Some Needed Preparationp. 153
Finding Peacep. 173
Epiloguep. 193
Further Resourcesp. 199
Further Readingp. 201
Acknowledgmentsp. 207
Indexp. 211
About The Children's Hospital at The Cleveland Clinicp. 219
About the Life Institutep. 220
Table of Contents provided by Rittenhouse. All Rights Reserved.

ISBN: 9780738205342
ISBN-10: 0738205346
Audience: Professional
Format: Paperback
Language: English
Number Of Pages: 240
Published: 1st December 2002
Country of Publication: GB
Dimensions (cm): 22.15 x 13.56  x 1.42
Weight (kg): 0.32
Edition Number: 1