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On the edge : Minority ethnic families caring for a severely disabled child - Rampaul Chamba

On the edge

Minority ethnic families caring for a severely disabled child

Paperback Published: 19th May 1999
ISBN: 9781861341341
Number Of Pages: 52

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Despite increased awareness of the needs, circumstances and experiences of families with a disabled child, and the acknowledgement of the need to tackle inequalities and barriers to access in recent NHS reforms, there has been little gain in health or improved access to services for minority ethnic groups. This report presents the findings of the first ever national survey in the UK, in which nearly 600 parents took part, which looked at the needs and circumstances of minority ethnic families caring for a severely disabled child. The quantitative survey was then compared with data on the circumstances and experiences of white families from an earlier survey. The authors highlight the key implications for services to help parents and their children - reducing social exclusion; meeting language, communication and information needs; and bridging and improving informal and formal support. On the edge will inform and influence managers and practitioners within health, education, social services and the voluntary sector about the particular needs and circumstances of minority ethnic families who are caring for a severely disabled child. It will also be a key resource for researchers and students in the fields of disability studies, social policy, social work, ethnic relations, health services research and related fields.

"Managers, planners of health services, and practitioners in health, education, social services and the voluntary sector would all benefit from reading this book." The Journal of the Royal Society for the Promotion of Health "... extremely informative ... the survey data contained within this book will go some way to reinforce the needs to improve equality for access to information." Therapy Weekly "... useful not only for readers interested in this particular field, but for those concerned about broader issues of equality and social justice." Health & Social Care in the Community

List of tables, figures and boxes
Acknowledgements
Introductionp. 1
Living circumstancesp. 3
Knowing and being understoodp. 9
Helping handsp. 15
Using servicesp. 19
The needs of parents and childrenp. 26
Implications for policy and practicep. 31
Referencesp. 35
The research processp. 37
The parents and their childrenp. 40
Table of Contents provided by Blackwell. All Rights Reserved.

ISBN: 9781861341341
ISBN-10: 1861341342
Audience: Professional
Format: Paperback
Language: English
Number Of Pages: 52
Published: 19th May 1999
Publisher: Policy Press
Country of Publication: GB
Dimensions (cm): 29.7 x 21.0
Weight (kg): 0.23