Living and Dying with Dementia

Dialogues about palliative care

By: Neil Small, Katherine Froggatt, Murna Downs

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Paperback | 9 August 2007

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Paperback
262 Pages

Dimensions(cm)
23.39 x 15.6 x 1.4

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Improvements in health care in the 21st century mean people are living longer, but with the paradox that chronic illness is increasingly prevalent. Dementia, a term used to describe various different brain disorders that involve a loss of brain function that is usually progressive and eventually severe, is a condition associated with an ageing population and is becoming increasingly common. Worldwide there are approximately 25 million people with dementia, expected to rise to 63 million by 2030, and 114 million by 2050.

Inevitably, people living with dementia will die, but their needs at the end of life are not well known. This book describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together, to achieve quality end of life care for this specific group of patients. It explores what is known about the experience of dying with dementia, using a narrative approach, and develops a model that draws together a 'person-centered' approach to care. The book examines the possibiities and the challenges faced when trying to improve quality of life for people with dementia, and presents examples of good practice from across the world.

Industry Reviews

I, for one, often feel inadequate when confronted with a patient with significant dementia, because so much of what I am used to doing relies on two-way communication. This book explores what is known about the experience of dying with dementia, including accounts from patients and carers...a useful resource for those who deal with patients with dementia and for palliative care workers whose practice brings them into contact with these patients. Roger Woodruff

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