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Genetics and Ethics in Global Perspective : International Library of Ethics, Law, and the New Medicine - Dorothy C. Wertz

Genetics and Ethics in Global Perspective

International Library of Ethics, Law, and the New Medicine

Hardcover Published: 31st January 2004
ISBN: 9781402017681
Number Of Pages: 474

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Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics".
This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning.
Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Prefacep. vii
The Survey and its Results
The 36-Nation Surveyp. 3
Global Inequityp. 14
The Rise of Autonomyp. 19
Counseling: Directive and Nondirectivep. 36
Is Modern Genetics Eugenics?p. 44
Genetics as a Family Affairp. 51
Privacy, Discrimination, and Public Healthp. 63
The Geography of Ethical Reasoningp. 75
References for Chapters 1-8p. 85
Reports from Our Colleagues: Genetics and Ethics in Individual Nations
Introduction to Part IIp. 93
Geneticists Speak Out: Culture, Ethics, and Historyp. 95
Organization of Genetic Servicesp. 106
Laws Affecting Genetic Servicesp. 165
China: Views of a Bioethicistp. 187
China: Views of a Geneticistp. 208
Germanyp. 223
Hungarian TV Viewers' Responsesp. 235
Indiap. 242
Japanp. 251
Perup. 262
Ethics and Genetics in Global Perspective
From Genetics to Genomics and Beyondp. 269
Moral Priorities, Cases and Practices in Medical Geneticsp. 281
About the Authorsp. 307
Tables for Chapters 1-8p. 317
WHO Proposed International Guidelinesp. 447
Indexp. 469
Table of Contents provided by Rittenhouse. All Rights Reserved.

ISBN: 9781402017681
ISBN-10: 1402017685
Series: International Library of Ethics, Law, and the New Medicine
Audience: General
Format: Hardcover
Language: English
Number Of Pages: 474
Published: 31st January 2004
Publisher: Springer-Verlag New York Inc.
Country of Publication: NL
Dimensions (cm): 23.5 x 15.88  x 2.54
Weight (kg): 0.89