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Paperback
Published: 1st May 2000
ISBN: 9780335199822
Number Of Pages: 162
This book brings together significant emerging work on ethnicity, disability, chronic illness and caring by leading researchers in the field. They explore the experience of minority ethnic people, and examine; the conceptualization of disability and chronic illness and the implications of particular definitions: the everyday living with a disability or chronic ill health; and the role of services in providing support to disabled people and carers.
In theoretical terms the book problematizes distinctions between users and carers, between the social model of disability and more individual medical discourses, and argues that chronic illness and impairment can be made sense of only within personal, social and citizenship contexts; and ethnicity and racism remain important aspects of this wider context for minority ethnic people with impairment or chronic ill health.
In terms of policy and practice, this volume highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families; and it shows that, although many of these users; experiences are shared with white users, the intensity and persistence of disadvantage that are faced by minority ethnic users can only be understood by reference to their radicalized worlds.
This book offers both theoretical advancement and practice relevance in the field, and is essential reading for students, teachers and researchers in health and community care, disability studies, social work, nursing, public health, social policy and sociology. The book will also be of value to practitioners and policy makers in health and social services.
| Notes on contributors | p. vi |
| Introduction | p. 1 |
| Perceptions of disability and care-giving relationships in South Asian communities | p. 12 |
| 'Causing havoc among their children': parental and professional perspectives on consanguinity and childhood disability | p. 28 |
| Living with sickle cell disorder: how young people negotiate their care and treatment | p. 45 |
| 'I send my child to school and he comes back an Englishman': minority ethnic deaf people, identity politics and services | p. 67 |
| Language, communication and information: the needs of parents caring for a severely disabled child | p. 85 |
| Service support to families caring for a child with a sickle cell disorder or beta thalassaemia major: parents' perspectives | p. 103 |
| South Asian carers' experiences of primary health care teams | p. 123 |
| References | p. 139 |
| Index | p. 150 |
| Table of Contents provided by Syndetics. All Rights Reserved. |
ISBN: 9780335199822
ISBN-10: 0335199828
Series: Race, Health, and Social Care (Paperback)
Audience:
General
Format:
Paperback
Language:
English
Number Of Pages: 162
Published: 1st May 2000
Publisher: Open University Press
Country of Publication: GB
Dimensions (cm): 22.9 x 15.2
x 1.1
Weight (kg): 0.23
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