This much-needed work is the first to combine a psychosocial perspective with in-depth clinical case examples that poignantly bring the issues to life. It describes in detail an array of modalities including family, individual, group treatment, as well as hypnotherapeutic techniques for non-pharmacologic pain management.
The volume presents a family-focused, culturally sensitive, and systems-coordinated approach for the provision of effective service delivery and care to HIV/AIDS children and their families. Called the Multisystems HIV/AIDS Model, it offers a conceptual framework that orients the service provider to the medical, cultural, psychosocial, and mental health needs of HIV-infected infants, children, and adolescents; mothers and other relatives who are also infected with HIV/AIDS; and uninfected but nonetheless affected family members and other caretakers.
A valuable tool for practitioners of all health care disciplines, the book, thoroughly integrates the most up-to-date knowledge on:
* Epidemiological, medical, neurological, and
* Prevention and treatment strategies for children,
adolescents, women, and families
* Multisystemic case management
* Providing continuity of care
* Implementing school interventions
* Community HIV/AIDS education, prevention, and outreach
* Ethical, moral, and legal concerns
* Research and public policy issues
The AIDS epidemic has stimulated practitioners to quickly develop cultural competency when working with multiple ethnic and racial groups. A key component of this book is its clear explication of the needs of African American, Hispanic/Latino, and Haitian children and families who are coping with HIV/AIDS.
Issues surrounding death and bereavement are addressed with compassionate sensitivity in a chapter that describes how many of these families must interweave multigenerational loss with their ongoing lives. The book also examines reactions of professionals who work with the HIV/AIDS population, discussing their special needs and ways to deal with professional burnout.
Providing a model of comprehensive care based on the authors' frontline experiences, this volume is essential reading for a wide range of helping professionals--from psychologists, psychiatrists, social workers, and pastoral counselors to researchers, medical practitioners, nurses, teachers, and school personnel. Public health and agency administrators designing programs for children with HIV/AIDS and their families will find it an invaluable resource. Written in an accessible style, and featuring illuminating case examples that are ideal for initiating class discussion, the book also serves as an excellent text for advanced students in these fields.
"Finally, a book devoted to the needs of children and adolescents facing HIV/AIDS. The challenges for these families, particularly those of the inner city and minorities, have been shamefully neglected. Clearly written and comprehensive, this book provides an empowering systems framework. Boyd-Franklin, Steiner, Boland, and other contributing authors skillfully guide professionals to meet the complex medical, cultural, and psychosocial needs of these families. This outstanding book is a must for all health and mental health professionals working with HIV/AIDS." --John S. Rolland, MD, Clinical Associate Professor of Psychiatry & Co-Director, Center for Family Health, University of Chicago, Author of Families, Illness, and Disability; An Integrative Treatment Model "The authors have detailed a comprehensive blueprint for caring for children and families with AIDS. In addition to placing the disease and its manifestations in a broad epidemiological and psychosocial context, they and their collaborators have constructed a well crafted approach to developing a multidisciplinary approach to the care of infants, children, adolescents, women, and families. From the supportive care of individuals to the development of support groups for children or care providers, the authors offer guidance based on models that have worked. Family-centered care is important for optimal health care. Although it is a necessity for children with AIDS, the principles of family-centered care are applicable to many other diseases and the principles offered in Children, Families and HIV/AIDS: Psychosocial and Psychotherapeutic Issues are relevant to all who care for children with serious disease." --Philip A. Pizzo, MD, Chief of Pediatrics, Head, Infectious Disease Section, National Cancer Institute, Professor of Pediatrics, Uniformed Services University of the Health Sciences
"This book is another important addition to the growing but still young body of literature about children and families affected by HIV disease and AIDS. A great strength is its interdisciplinary perspective and the expertise of its authors. I highly recommend it." --Felissa Lashley Cohen, RN, PhD, FAAN, Co-editor, Women, Children and HIV/AIDS and Head, Dept. of Medical-Surgical Nursing, University of Illinois at Chicago
"Informed and informative, touching, comprehensive, this is an extraordinary book--a major addition to our literature on a difficult and timely topic. The book is truly a tour de force, combining epidemiologic and research knowledge with down to earth practical suggestions of how to be helpful to families in an everyday way. The commitment of the authors to their work and to the lives of these families is clear. Their dedication as researchers, authors, and clinicians bears witness to the courage of these children and to the strength of their caregivers and families." --Monica McGoldrick, ACSW, PhD, Director, The Family Institute of New Jersey
.."..A very handy utilitarian resource that goes beyond most others in its attempts to educate all service providers who work with patients with HIV/AIDS. The authors' experience in working directly with families and children contributes significantly....This book can well serve as a beginning training text as well as an excellent resource guide." --Helene Rabinovitz, MSW in Smith College
..".A comprehensive overview of the issues involved in working with children and families with HIV disease....The volume covers a wide range of subjects and provides a wealth of valuable, practical information on an understudied and important topic...." --Rosalyn Benjamin Darling in Disability Studies Quarterly