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Caring for Children With Neurodevelopmental Disabilities and Their Families : An Innovative Approach to Interdisciplinary Practice - Claudia Maria Vargas

Caring for Children With Neurodevelopmental Disabilities and Their Families

An Innovative Approach to Interdisciplinary Practice

Paperback Published: 12th August 2004
ISBN: 9780805844771
Number Of Pages: 184

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Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences.
Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. "Caring for Children With Neurodevelopmental Disabilities and Their Families" constitutes a crucial new resource for all those professionally and personally concerned with these children.

Prefacep. xi
About the Contributorsp. xv
List of Case Stories and Disordersp. xix
A Different Kind of Challengep. 1
Models of Practice for Neurodevelopmental Disabilities, New and Oldp. 3
Training a Different Cadre of Health Professionals: Essential Elements at Workp. 10
The Practice of the Five Pillars in Various Contextsp. 20
Initiating a Journey of the Model in Practicep. 21
Family-Centered Care and the Family's Perspective: Traumatic Brain Injury, Cancer, and Co-Morbid Learning Challengesp. 35
Karla's Storyp. 35
A Family-Centered Care Philosophyp. 38
Entering the Maze: Dealing With Complexityp. 44
Working Through the Maze: Health, Education, and Communityp. 52
Lessons Learned and Implications for Practicep. 57
Cultural Competence in Differential Diagnosis: Posttraumatic Stress Disorder and Reactive Attachment Disorderp. 69
Natasha's Storyp. 69
Cross-Cultural Concepts of Health and Wellness and Health Needsp. 74
Consideration of Cultural, Linguistic, and Ancillary Factors That May Lead to Misdiagnosisp. 84
Cultural Competence Concerns Specific to Neurodevelopmental Disabilitiesp. 92
Cultural Competence in Serving Children With Disabilities and Their Familiesp. 96
Neonatal Intensive Care Unit Follow-Up Clinic: Interdisciplinary Developmental Assessment for At-Risk Infants and Their Familiesp. 114
Kylie and Her Familyp. 115
Dimir and His Familyp. 116
Edward and His Familyp. 117
High-Risk Infants: Specialized Care and Outcomesp. 118
Developmental Follow-Up for At-Risk Infantsp. 120
The Neonatal Intensive Care Unit Follow-Up Clinicp. 125
NICU Follow-Up Clinic Visit for Edward and His Familyp. 135
Outcomes of Neonatal Intensive Care Unit Follow-Up Clinicp. 136
Community-Based, Interdisciplinary Assessment: Considering the Context for a Child With Spina Bifidap. 147
David's Story: Spina Bifidap. 147
Rationale for an Interdisciplinary, Community-Based Assessmentp. 150
Process for Interdisciplinary, Community-Based Assessmentp. 152
Outcomes of the Interdisciplinary Assessmentp. 176
Care Coordination in Challenging Contexts: Attention Deficit, Language Learning Disabilities, and Hearing Impairmentp. 185
Carolina's Story: Attention Deficit and Language Learning Disabilityp. 186
Care Coordination: What Is It and How Does It Work?p. 187
Care Coordination for Carolina: An In-Depth Look at the Issuesp. 189
Family-Centered Carep. 189
Lessons Learnedp. 199
On the Cutting Edge of Ethical Dilemmas: Reconciling an Adolescent's Transition to Adulthoodp. 213
Jacques's Storyp. 213
Transition Planning for a Complex Family and Situationp. 217
Developmental Services, the Developmental Disabilities Assistance and Bill of Rights Act of 2000, and the Olmstead Decisionp. 218
Independent Living and Guardianship Issues for the Young Adult in Transitionp. 221
Natural Supports and Rural Issues for Young Adults in Transitionp. 224
The Young Adult's Voice Through Facilitated Communicationp. 226
The Role of Interdisciplinary Teams in Assessment and Transition Planningp. 228
Using Planning Tools for Young Adults in Transitionp. 231
Parent to Parent Practicum to Learn About the Family Perspective: Down Syndrome and Celiac Diseasep. 245
Nicole's Storyp. 245
The Practicum Experience: From a "Snapshot" to the "Album"p. 247
Family Practicum: The Processp. 248
Unique Insights: Trainees' "Aha!" Momentsp. 252
Trainees Observe Challenging Issuesp. 257
Trainees Learn About Family Strengthsp. 262
Lessons Learned and Implications for Practicep. 263
The Role of Partnerships in Program Development for Adolescents With Autism Spectrum Disordersp. 275
Sam's Story: Autism, Adolescence, and Transitionp. 275
Forming Partnerships to Meet the Needs of Children With Autism Spectrum Disordersp. 277
The Challenges of Differential Diagnosisp. 279
Benefits and Challenges of Partnerships in Program Developmentp. 289
Challenges in Safety, Transition, and Health Care for Children and Youth With Autism Spectrum Disordersp. 292
Building Capacity in Law, Policy, and Leadership: Public Administration in Support of Families and Cliniciansp. 303
Allison's Storyp. 303
Leadership: Integrating Public Policy, Public Law, and Management Into Clinical Practicep. 306
The Long-Term Challenge: What Have We Learned About What We Need to Build on for the Future?p. 327
The Pillars, the Process, and the People: An Innovative Approach to Training Health Professionals in Interdisciplinary Practicep. 335
Bringing It All Together: Interdisciplinary Practice From Theory to Actionp. 336
The Pillars: Improving the Quality of Life of Families and Children With Special Health Needsp. 346
The Process: Proactive, Community-Based Care From Infancy to Young Adulthoodp. 351
The People: Interdisciplinary Practice at Workp. 351
Looking Forward: Nagging Challengesp. 352
Author Indexp. 357
Subject Indexp. 363
Table of Contents provided by Rittenhouse. All Rights Reserved.

ISBN: 9780805844771
ISBN-10: 0805844775
Audience: Tertiary; University or College
Format: Paperback
Language: English
Number Of Pages: 184
Published: 12th August 2004
Country of Publication: US
Dimensions (cm): 22.86 x 16.05  x 2.16
Weight (kg): 0.54
Edition Number: 1