This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.
`Ann Goldman and her colleagues have cared for many dying children, so their insights are not mere theories. It is for the rest of us gratefully to apply them to paediatric practice.'
British Medical Journal
`Communication is only one aspect of care addressed by this very readable book which, with little accessible literature on the subject, will be valuable not only to paediatricians and family doctors but also to all those with an interest in palliative care. The book is well-referenced and this will provide not only a valuable guide to this difficult area of medicine but also a useful source for further reading.'
`This pithy book fills a void in the literature on the practical care of the child living with chronic, ultimately termal illness and his family... Not only are impressively detailed demographics of these families given, but the daunting diversity of the children's conditions and families' circumstances are explored in reference to their impact on the provision of care... This book will provide critical information to any healthcare worker who wants to help
children who are not expected to survive to adulthood, and their families. It is comprehensive, practical and easy to read.'
Progress in Palliative Care
Introduction - The magnitude of the problem
Different illness and the problems they cause
Support for the family
Communicating with children
Provision of care
Spiritual and cultural aspects
A. Drugs List
B. Useful contacts
C. Books for parents and children
D. Allowances for children