By: Nancy M.P. King (Editor), Gail E. Henderson (Editor), Jane Stein (Editor)

Paperback

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Across a broad range of disciplines--in medicine, social science, and the humanities--researchers, scholars, teachers, and administrators increasingly are looking for new ways to approach ethical issues in research with human subjects. Questions about how relationships between funders and researchers should affect research design, for example, or whether the potential benefits of research can outweigh the importance of its subjects' interests are inadequately addressed by the prevailing, regulation-based research ethics paradigm.

This book constitutes a reexamination of research ethics. It combines case studies and commentaries by a multidisciplinary group of scholars and researchers to explore such topics as informed consent, conflict of interest, confidentiality, and research on illegal behavior. All human subjects research takes place within complex social, cultural, and political contexts, the contributors argue. Increased consideration of the relationships between researchers and their subjects, funders, and institutions within these contexts will facilitate research that is sensitive and responsible as well as scientifically fruitful.

"Beyond Regulations" features a keynote essay by Ruth Macklin. Other contributors are Marcela Aracena Alvarez, Jorge Balan, B. Susan Bauer, Alan F. Benjamin, Lynn Blanchard, Allan M. Brandt, J. Pat Browder, Barbara Entwisle, Sue E. Estroff, Renee C. Fox, Lara Freidenfelds, Gail E. Henderson, Nancy M. P. King, Loretta M. Kopelman, Ernest N. Kraybill, Barry M. Popkin, Silvina Ramos, Desmond K. Runyan, Jane Stein, Ronald P. Strauss, Keith A. Wailoo, and Cynthia Waszak.

This superb collection of essays, carefully structured around six cases, analyzes the attendant policy issues with great insight.

Alexander M. Capron, School of Law, University of Southern California

Foreword
Acknowledgments
Introduction
Relationships in Research: A New Paradigm
Essay Introduction Is Ethics Universal?: Gender, Science, and Culture in Reproductive Health Research
Contracts and Covenants Introduction Contract and Covenant in Curaaao: Reciprocal Relationships in Scholarly Research
Contract and Covenant in Ethnographic Research
The Gaze of Scholars and Subjects: Roles, Relationships, and Obligations in Ethnographic Research
Community-based HIV Research Introduction Community Assessment and Perceptions: Preparation for HIV Vaccine Efficacy
Community Advisory Board-Investigator Relationships in Community-Based HIV/AIDS Research
Research Partnerships and People
Corporate Sponsorship of Research Introduction Truth-in-funding: Studying the Infant-feeding Controversy with Industry Support
Bias and Conflicts of Interest in Science: Controversial Industry Funding of Infant-feeding Studies
Context and Community: Assessing the Ethics of Industry-funded Research
Risk and Trust in Abortion Research Introduction Research on Induced Abortion in Argentina: Avoiding Self-Incrimination
Research on Induced Abortion in Argentina: Avoiding Self-Incrimination
The Contexts of Social Research
Studying Maltreatment in Families Introduction Maltreatment in Families: A Research
Child Abuse Research: Can Ethical Standards Be the Same in Developed and Developing Countries?
Research in Distressed Families: How Should Societies Make Judgments about Parents and Children?
Whose Consent? Introduction Can Community Consultation Substitute for Informed Consent in Emergency Medicine Research?
Can Community Consultation Substitute for Informed Consent in Emergency Medicine Research?: A Response
Medical Research: Using a New Paradigm Where the Old Might Do
Conclusion
Regulations and Relationships: Toward a New Synthesis
Nuremberg Code
Federal Common Rule
CIOMS Epidemiological Research Guidelines
CIOMS Biomedical Research Guidelines
Contract between Alan Benjamin and Congregation Mikvé Israel-Emanuel
Letter from Alan Benjamin to the Congregation
References
Contributors
Index
Table of Contents provided by Publisher. All Rights Reserved.

ISBN: 9780807847701
ISBN-10: 0807847704
Series: Studies in Social Medicine
Audience: Professional
Format: Paperback
Language: English
Number Of Pages: 304
Published: 26th April 1999
Dimensions (cm): 23.5 x 15.5  x 1.9
Weight (kg): 0.458